Direction of Vision UK 2019

Vision UK logo

19 September 2019
Source: Vision UK

Following on from the Vision UK Leadership Panel meeting held in May 2019 and comments from the members, the direction of Vision UK document has been reviewed and amended. The direction of the future work of Vision UK is the continued development of the infrastructure organisation to better facilitate and encourage partnership and collaborative work, while allowing and encouraging members

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Direction Of Vision UK
Direction Of Vision UK
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Retina UK publishes unique insight into the experiences of people with inherited retinal conditions

Retina UK logo

13 September 2019
Source: Retina UK

Evidence of the real-life experiences, challenges and expectations of almost 1,000 people affected by inherited sight loss conditions have been published by national sight loss charity Retina UK. The charity presented some of the key findings from its 2019 Sight Loss Survey when it was invited to represent its community during the recent NICE consultation for the gene therapy Voretigene

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Fight for Sight and The Royal College of Ophthalmologists invite applications for John Lee Primer Fellowships for research into sight loss

Fight for Sight logo

13 September 2019
Source: Fight for Sight

In partnership with The Royal College of Ophthalmologists, Fight for Sight is now inviting applications for its John Lee Primer Fellowships, offering up to £60,000 to support early career ophthalmologists to undertake ground-breaking vision research. The scheme is designed to enable successful applicants to go on to complete a PhD and will provide them with experience and exposure to a

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Action Against AMD (AAAMD) partners with leading organisations and the UK Government to establish the Health Data Research Hub for Eye Health

13 September 2019
Source: AAAMD

AAAMD is a partner in INSIGHT – Health Data Research Hub for Eye Health. INSIGHT is one of the seven pioneering data research centres to enable cutting-edge research and innovation to benefit UK patients. There is an increasing demand for ‘big data’ to enable innovation in health technologies and improve patient care. INSIGHT creates an NHS-academic-industry partnership to make anonymised

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RNIB Scotland, Down’s Syndrome Scotland, LEAD Scotland, National Deaf Children’s Society, Scottish Autism, ENABLE Scotland and The Alliance.

12 September 2019
Source: RNIB Scotland

A coalition of disability charities is urging all 32 Scottish local authorities to maintain vital funding for children and young people with additional support needs (ASN). The children and young people concerned, an estimated 199,000 in total, include those with physical, sensory or learning disabilities in mainstream education, as well as those with health conditions. In a letter to council

Read more RNIB Scotland, Down’s Syndrome Scotland, LEAD Scotland, National Deaf Children’s Society, Scottish Autism, ENABLE Scotland and The Alliance.

Agenda for the ADASS physical & sensory impairment & HIV/AIDS network meeting 18/10/19

12 September 2019
Source: ADASS physical & sensory impairment & HIV/AIDS network

The re-scheduled meeting of the ADASS physical & sensory impairment & HIV/AIDS network will take place at 11- 3 on the 18th October 2019 at The Pocklington Hub, BMA House, Entrance D, 4th Floor, Tavistock House South, Tavistock Square, WC1H 9LG. The agenda for the meeting is attached A Speech to Text reporter has been booked for this meeting Sign

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ADASS Agenda 18
ADASS Agenda 18

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House of Commons Transport Committee publish their report into Pavement Parking

10 September 2019
Source: The Transport Select Committee

The Transport Select Committee is a cross-party group of MPs in the House of Commons who scrutinise the work of the Department for Transport. They recommend a ban on pavement parking across England and an awareness campaign about the negative impacts of pavement parking. Read the full report here Vision UK support this call and the work of our members

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Government Review into Support for Children and Young People with SEND

6 September 2019
Source: Council for disabled children

The government has today announced a major new review into support for children and young people with Special Educational Needs and Disabilities (SEND). The review is designed to improve services for disabled children and young people and their families. The review aims to evaluate the impact of these reforms, and to identify improvements. Too often disabled children and those with

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BBC News: Gene therapy for rare eye disease set to be offered on NHS

4 September 2019
Source: BBC News

Patients with a rare inherited eye disorder are set to be able to access a new gene therapy on the NHS which slows down sight loss. Draft NICE guidance recommends the therapy (Luxturna) to treat inherited retinal dystrophies. The National Institute for Health and Care Excellence estimates just under 90 people in England will be eligible for the treatment. Drug

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SeeAbility and Beyond Words: New picture book will promote better eye health for people with learning disabilities

3 September 2019
Source: SeeAbility and Beyond Words

Adults with learning disabilities are 10 times more likely to have serious sight problems than other people, yet research shows that 50% of adults with learning disabilities haven’t had a sight test for at least two years. Most will need extra support to recognise and report changes in their vision, and also to access the eye care services to which

Read more SeeAbility and Beyond Words: New picture book will promote better eye health for people with learning disabilities