Blind Veterans UK, Oxford University, and Circadian Therapeutics are seeking vision-impaired individuals between 18 – 70 years to participate in a research project exploring experiences of sleep and daily rhythm disruption

29 November 2019
Source: Blind Veterans UK

Participants will be asked to complete a questionnaire (online or by phone) to understand more about vision status, health, and sleep. The questionnaire will also assess eligibility to participate in Part 2 of the research study: including 4-weeks of at-home sleep and daily rhythm monitoring, followed by a 2-night stay at the Blind Veterans UK Centre in Brighton to measure

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Retina UK: Latest update from ReNeuron stem cell trial

18 November 2019
Source: Retina UK

ReNeuron has announced an encouraging update on the progress of its Phase 1/2 trial of a stem cell-based therapy for retinitis pigmentosa, describing the most recent results as a “clear signal of efficacy”. Most of the 22 trial participants demonstrated improved visual acuity in their treated eye, reading anywhere between 5 and 11 more letters on an eye chart three

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Science Direct: Time outdoors and the prevention of myopia

8 October 2019
Source: Science Direct.

Amanda N.Frencha, Regan S,.Ashby, Ian G.Morgan, Kathryn A.Rose Highlights •  Children who spend more time outdoors are less likely to become myopic. •  This protection appears to be due to time outdoors, rather than engagement in sport. •  Effect sizes suggest that more time outdoors could reduce myopia in children. •  Dopamine release may be stimulated by bright outdoor light,

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Direction of Vision UK 2019

Vision UK logo

19 September 2019
Source: Vision UK

Following on from the Vision UK Leadership Panel meeting held in May 2019 and comments from the members, the direction of Vision UK document has been reviewed and amended. The direction of the future work of Vision UK is the continued development of the infrastructure organisation to better facilitate and encourage partnership and collaborative work, while allowing and encouraging members

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Direction Of Vision UK
Direction Of Vision UK
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Action Against AMD (AAAMD) partners with leading organisations and the UK Government to establish the Health Data Research Hub for Eye Health

13 September 2019
Source: AAAMD

AAAMD is a partner in INSIGHT – Health Data Research Hub for Eye Health. INSIGHT is one of the seven pioneering data research centres to enable cutting-edge research and innovation to benefit UK patients. There is an increasing demand for ‘big data’ to enable innovation in health technologies and improve patient care. INSIGHT creates an NHS-academic-industry partnership to make anonymised

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BBC News: Gene therapy for rare eye disease set to be offered on NHS

4 September 2019
Source: BBC News

Patients with a rare inherited eye disorder are set to be able to access a new gene therapy on the NHS which slows down sight loss. Draft NICE guidance recommends the therapy (Luxturna) to treat inherited retinal dystrophies. The National Institute for Health and Care Excellence estimates just under 90 people in England will be eligible for the treatment. Drug

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Fight for Sight and Royal College of Ophthalmologists: John Lee Primer Fellowship

22 August 2019
Source: Fight for Sight and Royal College of Ophthalmologists

Fight for Sight’s mission is to stop sight loss by funding the highest quality medical research and they are proud to collaborate with the Royal College of Ophthalmologists to help achieve this goal. The John Lee Primer Fellowship is designed to support early stage ophthalmologists to undertake ground-breaking vision research and represents the first step for ophthalmologists to obtain a

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Fight for Sight: Examining the role of vitamin B3 supplementation in reducing and preventing retinal cell damage caused by glaucoma

20 August 2019

Fight for Sight is funding researchers at Cardiff University to examine the extent to which dietary supplementation of Nicotinamide – a form of vitamin B3 – can be used to reduce, and even prevent, retinal damage caused by glaucoma. This important research could help pave the way for new types of treatment for glaucoma, which are currently focused only on

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IRD COUNTS Invites You To Participate In A Survey

18 March 2019
Source: IRD counts

Inherited Retinal Dystrophies Consortium Operating for the Under-Represented for Novel Therapies and Services IRD COUNTS AND SO DO YOU! HAVE YOUR SAY! YOUR EXPERIENCE IS IMPORTANT! IRD COUNTS Invites You To Participate In A Survey Of Inherited Retinal Disease (IRD) Patients And Those Who Care For Them Have you or someone you know been diagnosed with an IRD? The impact

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IRD Survey Flyer
IRD Survey Flyer
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