4 Jul 2020
Time: 9:30 am - 6:00 pm
Price: Free, but places must be booked in advance
Location: Sense Touchbase Pears Centre, Birmingham
For: Children and young people with Usher Syndrome and families (including siblings of any age)
Usher Kids UK family event is supported by Retina UK. It will give children living with Usher syndrome and their siblings the chance to meet others who share similar experiences, and to build friendships whilst making memories and having fun!
Whilst the kids are kept busy the parents and carers can hear from Usher syndrome experts from the fields of ophthalmology, research, technology, education and emotional support. The specialists will be able to give tailored information to help deal with the challenges that Usher syndrome can present. There will be opportunities to hear from inspirational young adults living with Usher syndrome, and plenty of time to build your own networks and chat about common issues with other parents.