22 Jun 2019
Time: All Day
Price: Free, but places must be booked in advance
Location: Sense Touchbase Pears Centre, Birmingham
Who: Children and young people with Usher Syndrome and families (including siblings of any age)
Usher Kids UK family event, supported by Retina UK and is set to be the UK’s largest ever gathering of the Usher family community. For many children and their families it will be the first chance they have ever had to meet others living with Usher syndrome, so represents a really vital and unique opportunity to develop their network and receive tailored information and support from experts, addressing the specific challenges of living with progressive dual sensory loss.