UK Wide

Eye Clinic Liaison Officers (ECLO's, or Vision Support Officers / VSO in Scotland)

ECLOs are trained non-clinical staff working within the eye department providing patients and their families with vital quality emotional and practical support. They help patients and their families to understand the diagnosis and connect them with key services, referring or signposting to other organisations that provide support.”

To find out about this role:
http://www.rnib.org.uk/nb-online/day-life-paediatric-eclo

Guide Dogs Children's Services

Guide Dogs Children’s Services supports families and carers with the challenges of getting through the initial diagnosis through the journey into adulthood. They have teams of specialist workers across the UK who at the time of diagnosis can provide vital emotional and practical support advice and information making a world of difference to parents.

They help children and young people with vision impairment reach their potential through specialist Habilitation services where children and young people make full use of their senses and develop their, early movement, mobility and self-help skills.

The services we provide (0 to 25 years) are

  • Family Support: specialist in early diagnosis support
  • Habilitation service: largest provider of habilitation in the UK
  • Education Support: QTVI qualified specialist advisors
  • Access technology Support
  • Recreation events for the whole family.
  • CustomEyes: customised large print books

Contact Details

Guide Dogs Children’s Services
UK wide

Phone: 0800 781 1444

Email:  guidedogs@guidedogs.org.uk

Website: www.guidedogs.org.uk

 

British and Irish Orthoptic Society

Orthoptists are autonomous practitioners and work in the eye care team and within wider multi professional teams who are experts in assessing vision function in children and young people of all ages and abilities. Children and young people may be referred directly to the orthoptist by health and educational professionals when vision problems or impairment are suspected. In many cases the Orthoptist is the first clinician to assess a child, discuss the diagnosis and ensure that the needs of the child are met by signposting and supporting families and carers about services available to them locally.

Contact Details

Salisbury House
Station Road
Cambridge
CB1 2LA
United Kingdom

Phone: 01353 66 55 41
Email: bios@orthoptics.org.uk
www.orthoptics.org.uk/

Look

Look is a small but national charity.

It aims to improve the lives of visually impaired children and their families by creating opportunities for families to connect with each other, signposting to vital information and services, and ultimately removing barriers so visually impaired children can fulfil their potential.

Contact Details

LOOK National Office
c/o Royal National College for the Blind (RNC)
Venns Lane
Hereford
HR1 1DT

Phone: 01432 376314
Email: info@look-uk.org

www.look-uk.org/

RNIB group of charities: RNIB

RNIB support blind and partially sighted children and young people, their families and education professionals. Services include:

  • Information and resources for parents
  • Family support, events and activities
  • Teaching and learning guidance
  • Information and networks for young people
  • Research and campaigns

www.rnib.org.uk/education

Contact Details

RNIB
105 Judd Street,
London
WC1H 9NE

Helpline

Phone: 0303 123 9999
Email: helpline@rnib.org.uk

www.rnib.org.uk/children
www.rnib.org.uk/parents
www.rnib.org.uk/education

Action for Blind People

Regional Children, Young People and Families Teams:

https://actionforblindpeople.org.uk/support-and-information-page/support/children-young-people-families/contact-our-children-young-people-and-families-team/

Royal London Society for Blind people (RLSB)

RLSB has exists to stop childhood sight loss becoming a lifelong disability. Services include an expert blend of education, sport, creative and developmental services, delivered in London and the south east. They aim to support blind and partially sighted young people to unleash their potential and live and learn for the life they want.

In 2015 the RSBC, formerly known as The Royal Blind Society, announced that we planned to merge with the Royal London Society for Blind People (RLSB) to significantly improve the life chances of blind children and young people in England and Wales.

Contact Details

Royal London Society for Blind People (RLSB)
52-58 Arcola Street
London
E8 2DJ

Phone: 020 3198 0225
Email: enquiries@rlsb.org.uk

www.rlsb.org.uk

For RSBC Family Support Service and general enquiries please contact us on:

Email: info@rsbc.org.uk
Phone: 020 3198 0225
Address:
Royal Society for Blind Children
59-61 Sea Lane
Rustington
Littlehampton
West Sussex
BN16 2RQ

SeeAbility

SeeAbility is a UK charity supporting people with sight loss and multiple disabilities.  As well as providing specialist accommodation and support, the charity shares its knowledge of supporting people with sight loss and learning disabilities proactively across the UK and acts to improve and increase access to eye care and vision services for people with learning disabilities.

There is a wealth of free information to download, print and share on SeeAbility’s website including easy read factsheets about eye care and eye health; a functional vision assessment tool; videos; and details of optometrists who can support people with learning disabilities to have an eye test and access good eye care.

Contact Details

SeeAbility Central Office
Newplan House,
41 East Street,
Epsom, Surrey KT17 1BL

Phone: 01372 755 000
Email: enquiries@seeability.org

www.seeability.org

SENSE

Sense is a national charity that supports people who are deafblind, have sensory impairments or complex needs, to enjoy more independent lives. Their expertise in supporting individuals with communication needs benefits people of all ages, as well as their families and carers. They provide information and advice, offer a wide range of flexible services and campaign passionately for the rights of the people they serve.

Founded in 1955 by a group of families affected by rubella, Sense developed specialist skills and knowledge in supporting people to communicate, express themselves and grow in independence. This experience now enables Sense to help people with a much wider range of disabilities.

Their specialist services are built around the wishes and needs of the individual, supporting people to be as independent as possible.  Their services include a range of housing options, resource centres, educational support, short breaks and arts, sport and wellbeing programmes.

Contact Details

Sense
101 Pentonville Road
London N1 9LG

Phone: 0300 330 9256 or 020 7520 0972
Textphone: 0300 330 9256 or 020 7520 0972
Fax: 0300 330 9251
Email: info@sense.org.uk

www.sense.org.uk/

The Council for disabled children

This is the umbrella body for the disabled children’s sector bringing together professionals, practitioners and policy-makers.

They work collaboratively, from policy into practice, to ensure the best outcomes for children and young people

They have an online library of resources that you can access to find out more about disability policy and practice which includes a selection of materials specifically written with parents in mind. You can find some helpful resources at

Contact Details

https://councilfordisabledchildren.org.uk/resources-and-help/im-parent

VICTA

VICTA provides support to children and young people who are blind or partially sighted and their families.

The charity aims to provide emotional support and ensure that vision impaired children are given the same opportunities as sighted children.

VICTA organises activities designed to improve the emotional, social and living skills of the children and young people that we support.

Contact Details

VICTA
Silverstone House
46 Newport Road
Woolstone
Milton Keynes
Buckinghamshire
MK15 0AA

Phone: 01908 672 163
Email: admin@victa.org.uk

www.victa.org.uk

VIEW – Vision Impairment, Education and Well-being

VIEW is a professional membership association for QTVIs (Qualified Teachers of children and young people with vision impairment), and everyone supporting children and young people with vision impairment, including LSAs, mobility and habilitation specialists, and trainee QTVIs. VIEW supports and champions best practice, and promotes the specialist VI education sector – representing the interests of children and young people with vision impairment

If you are looking for information about education or want to find out more about the role of specialist teachers then you might like to visit the VIEW website.

Contact Details

www.viewweb.org.uk

Visionary

Visionary is a membership organisation for local independent charities that support blind and partially sighted people across the UK.  These independent local charities provide practical on the ground services for local people with sight loss.

Bringing together a wealth of experience and expertise in the sector, Visionary acts as the collective voice for local organisations.

For information about which local charities have services for children see

www.rnib.org.uk/insight-online/local-support-children-vision-impairment