Charles Bonnet Syndrome Day – Raising UK Awareness

Esme's Umbrella logo

14 November 2018
Source: Vision Direct

The world’s first Charles Bonnet Syndrome Patient Day will be hosted on 16th November 2018 at Moorfields’ Hospital. We’ve invited Judith Potts, the founder of Charles Bonnet Syndrome campaign Esme’s Umbrella, to talk about what Charles Bonnet Syndrome is, as well as how it directly affected her life. What is Charles Bonnet Syndrome? Charles Bonnet Syndrome (CBS) is a condition

Read more Charles Bonnet Syndrome Day – Raising UK Awareness

Esme’s Umbrella announce new helpline for people with Charles Bonnet Syndrome

8 October 2018
Source: Esme's Umbrella

Esme’s Umbrella is the Campaign Group for everyone working towards a greater awareness of Charles Bonnet Syndrome.which causes visual hallucinations in people with sight Loss. The new Helpline – 020 7391 3299 calls will be answered by the professional Eye Health Team at the RNIB and referrals for peer support can be made to RP Fighting Blindness. Full information on

Read more Esme’s Umbrella announce new helpline for people with Charles Bonnet Syndrome

Esme’s Umbrella 2017 roundup

8 January 2018
Source: Esme's Umbrella/Judith Potts

Esme’s Umbrella ended 2017 on a hugely positive note – or many notes! Dr Greg Elder is our new researcher and he – along with his colleague, Dr John-Paul Taylor – at Newcastle University will be working to find out why some people with sight loss do not develop CBS. To this end, he will compare the brains of people with sight loss

Read more Esme’s Umbrella 2017 roundup