IRD COUNTS Invites You To Participate In A Survey

18 March 2019
Source: IRD counts

Inherited Retinal Dystrophies Consortium Operating for the Under-Represented for Novel Therapies and Services IRD COUNTS AND SO DO YOU! HAVE YOUR SAY! YOUR EXPERIENCE IS IMPORTANT! IRD COUNTS Invites You To Participate In A Survey Of Inherited Retinal Disease (IRD) Patients And Those Who Care For Them Have you or someone you know been diagnosed with an IRD? The impact

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IRD Survey Flyer
IRD Survey Flyer
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Moorfields: Invitation to individuals who have Usher syndrome or Choroideremia to take part in a short discussion about a new research study

25 September 2017
Source: Moorfields

Moorfileds would like to invite individuals who have Usher syndrome or Choroideremia to take part in a short discussion about a new research study we are currently planning. The study aims to see if an already licensed and NICE approved drug called Ataluren can slow the progression of loss of sight in people who have “nonsense” mutations. The drug acts

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Fight for Sight: Choroideremia gene therapy gives long-term benefit to vision

3 May 2016
Source: Fight for Sight

Results from a 3.5-year follow-up study show that patients who took part in the world’s first gene therapy clinical trial for choroideremia have had a long-lasting benefit to their eyesight. The clinical trial was led by Professor Robert MacLaren at the University of Oxford and was made possible due to research by Professor Miguel Seabra at Imperial College London supported

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