Centre for Trials Research, College of Biomedical & Life Sciences, Cardiff University: Family members’ experiences of informed consent and proxy decision making for research involving adults lacking capacity

14 February 2018
Source: University of Cardiff

Can you be involved?   Around 2 million people in the UK have significantly impaired mental capacity due to neurodegenerative conditions such as dementia, acute medical emergencies such as stroke, or associated with learning or intellectual disabilities. Research involving people who have impaired decision-making capacity raises ethical and practical challenges, including the need for others to be involved in the informed

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