Home >
Tags >
Nystagmus Network
7 November 2018
Source: The University of Sheffield
Information about nystagmus has been developed into a ‘Nystagmus Information Pack’ by a team at the Academic Unit of Ophthalmology and Orthoptics. This Nystagmus Information Pack is aimed at patients with nystagmus, families, teachers, other professionals and people who would like to find out more about nystagmus. The need for better information about the condition came from discussions with people
Read more University of Sheffield and Nystagmus Network: Nystagmus Information Pack
28 September 2018
Source: Fight for Sight and Nystagmus Network
Fight for Sight and The Nystagmus Network have announced funding for three exciting nystagmus research projects at the Nystagmus Network Conference, which is taking place today during National Eye Health Week 2018. In total £30,000 in funding will be used for projects bringing benefits to children and adults living with the condition, which is characterised by involuntary and repetitive movements
Read more National Eye Health Week 2018: Research funding will use iPads to identify the best method to manage nystagmus
13 July 2018
Source: Nystagmus Network
The Nystagmus Network is funding equipment and testing to underpin nystagmus research taking place at Cardiff University School of Optometry and Vision Sciences, in collaboration with the genetics research team at the University of Southampton. On behalf of the Cardiff team, Nikita Thomas reports: “Our study attempts to investigate how visual function in Idiopathic Nystagmus is related to the formation
Read more Nystagmus Network: Nystagmus research – a progress report
12 January 2018
Source: Nystagmus Network
The Nystagmus and Driving Booklet created by the Nystagmus Network contains advice for someone with congenital nystagmus who might be considering learning to drive or someone unsure whether they should continue to drive following a diagnosis of acquired nystagmus. Nystagmus and Driving
Read more Nystagmus and Driving Booklet from the Nystagmus Network
2 January 2018
Source: FIght for Sight, Nystagmus Network
Fight for Sight and Nystagmus Network have partnered to fund research aimed at the early detection of nystagmus and improve the quality of life of those with the condition. Fight for Sight, the UK’s leading eye research charity, and Nystagmus Network, the foremost UK charity providing support and information about nystagmus, are working in partnership to fund research into a
Read more Funding research into a technological solution for repeated involuntary eye movement
18 April 2017
Source: Nystagmus Network
When I was a baby a doctor told my mum I was blind. I wasn’t blind, of course, but I did have nystagmus. Now I’m seven and I’ve still got nystagmus. This is how I see the world through wobbly eyes …
Read more A child’s view of nystagmus
3 March 2017
Source: Nystagmus Network
In 2016 the trustees at the Nystagmus Network undertook a review of the charity’s involvement in research projects focusing on nystagmus.
Read more Introducing the Nystagmus Network research strategy
5 January 2017
Source: Nystagmus Network
We wanted to being 2017 by sharing a good news story by Meg Tatton which we hope will inspire other parents and show that there should be no barriers in the classroom.
Read more Nystagmus Network: An inspiring story
28 November 2016
Source: Nystagmus Network
My daughter has congenital idiopathic nystagmus. Idiopathic means that despite having every test available no physiological cause can be found. Congenital means that it was either present at birth or very early on in life.
Read more Discovering your baby has nystagmus
26 August 2016
Source: Nystagmus Network
Over the years, we’ve tried different ways of explaining nystagmus, from the full on science of the involuntary eye wobble, to a simple “he doesn’t see very well.” We’ve found that explaining the effects rather than the cause is best.
Read more Nystagmus Network – explaining nystagmus
