Jeans for nystagmus genes

Nystagmus Network Logo

12 July 2019
Source: Nystagmus Network

In July 2019, the Nystagmus Network is celebrating after hearing the news they will receive a grant from Genetic Disorders UK, the national charity which organises the annual fundraising day, Jeans for Genes Day. This grant, from funds raised on the Day, will be used to fund the Nystagmus Network Big Adventure. Nystagmus Network chairman, Richard Wilson OBE said: “This

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Our biggest ever investment in nystagmus research

29 April 2019
Source: Nystagmus Network

Thanks to the generosity of our members, fundraisers and supporters and our longstanding partnership with Fight for Sight, the UK’s leading eye research charity, the Nystagmus Network is delighted to be able to announce our biggest ever funding commitment to nystagmus research. At the Nystagmus Network nystagmus research workshop in September 2018, charity trustees asked the UK research and clinical

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Nystagmus Network funding leads to discovery of new algorithm

Nystagmus Network Logo

10 April 2019
Source: Nystagmus Network

A paper ‘An automated segmentation approach to calibrating infantile nystagmus waveforms’ relating to a research project by members of the Cardiff University team and others, which the Nystagmus Network funded, has been formally published. The report describes an algorithm which takes an eye-tracking recording and automatically separates it into its component parts (quick phases, slow phases and foveations*), allowing several

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Nystagmus and driving – publication update

Nystagmus Network Logo

10 March 2019
Source: Nystagmus Network

In line with recent changes at the DVLA we have updated our free to download booklet, Nystagmus and Driving. To make sure you know all the facts about driving and nystagmus, please download your copy today. Because of the hundreds of questions we are asked every year about nystagmus and driving, we shall be joined this year at Open Day

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Nystagmus Network’s new resources for 2019

Nystagmus Network Logo

22 January 2019
Source: Nystagmus Network

Nystagmus Network has published two brand new free PowerPoint presentations: Introducing Nystagmus or Wobbly Eyes – aimed at children at school or nursery. The presentation gives an overview of the condition and explains what it is like to have nystagmus. Introducing Nystagmus – designed to be shown on screens at reception in your workplace, clinic or hospital waiting room. The presentation gives

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Nytagmus Network: Christmas photography competition

28 December 2018
Source: Nystagmus Network

Before you take down the tree, while you’re out on a festive walk, or just because you’ve caught the dog looking silly, please take a Christmassy photo and send it to us. This holiday we’re running a competition to find the best Christmassy photo to feature on the Nystagmus Network Christmas card next year. Please help us make sure it

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University of Sheffield and Nystagmus Network: Nystagmus Information Pack

7 November 2018
Source: The University of Sheffield

Information about nystagmus has been developed into a ‘Nystagmus Information Pack’ by a team at the Academic Unit of Ophthalmology and Orthoptics. This Nystagmus Information Pack is aimed at patients with nystagmus, families, teachers, other professionals and people who would like to find out more about nystagmus. The need for better information about the condition came from discussions with people

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National Eye Health Week 2018: Research funding will use iPads to identify the best method to manage nystagmus

28 September 2018
Source: Fight for Sight and Nystagmus Network

Fight for Sight and The Nystagmus Network have announced funding for three exciting nystagmus research projects at the Nystagmus Network Conference, which is taking place today during National Eye Health Week 2018. In total £30,000 in funding will be used for projects bringing benefits to children and adults living with the condition, which is characterised by involuntary and repetitive movements

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Nystagmus Network: Nystagmus research – a progress report

13 July 2018
Source: Nystagmus Network

The Nystagmus Network is funding equipment and testing to underpin nystagmus research taking place at Cardiff University School of Optometry and Vision Sciences, in collaboration with the genetics research team at the University of Southampton. On behalf of the Cardiff team, Nikita Thomas reports: “Our study attempts to investigate how visual function in Idiopathic Nystagmus is related to the formation

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Nystagmus and Driving Booklet from the Nystagmus Network

12 January 2018
Source: Nystagmus Network

The Nystagmus and Driving Booklet created by the Nystagmus Network contains advice for someone with congenital nystagmus who might be considering learning to drive or someone unsure whether they should continue to drive following a diagnosis of acquired nystagmus. Nystagmus and Driving

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