Retina UK publishes unique insight into the experiences of people with inherited retinal conditions

Retina UK logo

13 September 2019
Source: Retina UK

Evidence of the real-life experiences, challenges and expectations of almost 1,000 people affected by inherited sight loss conditions have been published by national sight loss charity Retina UK. The charity presented some of the key findings from its 2019 Sight Loss Survey when it was invited to represent its community during the recent NICE consultation for the gene therapy Voretigene

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Retina UK: Sight loss survey 2019

19 March 2019
Source: Retina UK

This survey is your opportunity to tell Retina UK about your experiences of living with inherited sight loss. Retina UK want to find out more about how sight loss affects everyday life, what support and services you access, and how best Retina UK can support you to lead a fulfilling life. Who should complete this survey? You, if you are living

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New developments in the search for treatments for Stargardt disease

Retina UK logo

10 March 2019
Source: Retina UK

Stargardt disease principally affects central vision, with onset usually occurring during adolescence or young adulthood, and is frequently caused by errors in a gene known as ABCA4. However, in many cases, no faults can be found in the sections of the gene that code for the building block ‘ingredients’ of the ABCA4 protein, meaning that there are no clues to

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Retina UK: Gene therapy for RPE65 gene approved for use in EU

23 November 2018
Source: Retina UK

The gene therapy Luxturna has won European regulatory approval for the treatment of Inherited retinal dystrophy caused by mutations in the RPE65 gene. This milestone decision was made by the European Medicines Agency (EMA) on Thursday, 22 November. Luxturna is the first and only gene therapy available in Europe to treat inherited retinal disease. It had already been approved for

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Retina UK Working Age Group Project. Get involved.

5 November 2018
Source: Retina UK

You may be familiar with our ongoing Working Age Group Project, which aims to provide future employment services to working age people who are living with degenerative sight loss. This project is being led by Retina UK (Previously RP Fighting Blindness), in partnership with sight loss charities Thomas Pocklington Trust, Visionary and RNIB. In order to develop these services, and

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RP Fighting Blindness rebrands to Retina UK

Retina UK logo

17 October 2018
Source: Retina UK

We are proud and excited to share the news that today we rebranded to Retina UK. You can find our new website at http://www.RetinaUK.org.uk The rebrand is a pivotal moment for our charity and we are hugely excited by the opportunities that lay ahead. Our Chief Executive, Tina Houlihan, said: “While we have a new name, logo and brand, our

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