Retina UK: Latest update from ReNeuron stem cell trial

18 November 2019
Source: Retina UK

ReNeuron has announced an encouraging update on the progress of its Phase 1/2 trial of a stem cell-based therapy for retinitis pigmentosa, describing the most recent results as a “clear signal of efficacy”. Most of the 22 trial participants demonstrated improved visual acuity in their treated eye, reading anywhere between 5 and 11 more letters on an eye chart three

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No one should face sight loss alone

Visualise Training and Consultancy logo

15 July 2019
Source: Visualise Training and Consultancy

I’m losing my sight; at the age of 8, I was diagnosed with retinitis pigmentosa so have very little vision and will eventually lose it completely. My mum and I felt totally isolated and very scared as we didn’t know how to access support, despite seeing countless eyecare professionals; signposting and referrals to support services would have made our journey

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IRD COUNTS Invites You To Participate In A Survey

18 March 2019
Source: IRD counts

Inherited Retinal Dystrophies Consortium Operating for the Under-Represented for Novel Therapies and Services IRD COUNTS AND SO DO YOU! HAVE YOUR SAY! YOUR EXPERIENCE IS IMPORTANT! IRD COUNTS Invites You To Participate In A Survey Of Inherited Retinal Disease (IRD) Patients And Those Who Care For Them Have you or someone you know been diagnosed with an IRD? The impact

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IRD Survey Flyer
IRD Survey Flyer
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RNIB: NHS England is recruiting people with RP for bionic eye surgery evaluation

27 September 2017
Source: RNIB

Ten people with Retinitis Pigmentosa are being asked to review the benefits of an eye implant. Selected applicants will take part in the evaluation of the small implant, called Argus II, or the ‘bionic eye’, which will be surgically fitted into their retina. Following the surgery, participants of the evaluation will receive rehabilitation for one year to help them use

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University of Oxford: BBC: Hereditary blindness cure tested

5 April 2017

A virus carrying corrective DNA into cells at the back of the eye is being tested to treat one of the most common forms of hereditary blindness in young men and boys. It targets XLRP (X-linked retinitis pigmentosa), which is progressive and currently incurable. Professor Robert MacLaren of Oxford University is the leader of this first trial on patients in

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Retinitis pigmentosa gene discovery may reveal a new route to inherited blindness

28 November 2016
Source: Fight for Sight

Researchers at UCL Institute of Ophthalmology and Moorfields Eye Hospital with funding from Fight for Sight, in collaboration with a team from Baylor College of Medicine in the USA, have discovered a new retinitis pigmentosa gene.

Read more Retinitis pigmentosa gene discovery may reveal a new route to inherited blindness