IRD COUNTS Invites You To Participate In A Survey

18 March 2019
Source: IRD counts

Inherited Retinal Dystrophies Consortium Operating for the Under-Represented for Novel Therapies and Services IRD COUNTS AND SO DO YOU! HAVE YOUR SAY! YOUR EXPERIENCE IS IMPORTANT! IRD COUNTS Invites You To Participate In A Survey Of Inherited Retinal Disease (IRD) Patients And Those Who Care For Them Have you or someone you know been diagnosed with an IRD? The impact

Read more IRD COUNTS Invites You To Participate In A Survey
IRD Survey Flyer
IRD Survey Flyer
Download pptx 0.6 MB

Retina UK Working Age Group Project. Get involved.

5 November 2018
Source: Retina UK

You may be familiar with our ongoing Working Age Group Project, which aims to provide future employment services to working age people who are living with degenerative sight loss. This project is being led by Retina UK (Previously RP Fighting Blindness), in partnership with sight loss charities Thomas Pocklington Trust, Visionary and RNIB. In order to develop these services, and

Read more Retina UK Working Age Group Project. Get involved.

FDA approves Luxturna to treat patients with inherited retinal disease

21 December 2017
Source: FIght for Sight

The US Food and Drug Administration (FDA) has this week approved the first ever gene therapy treatment, Luxturna (Voretigene Neparvovec), for inherited retinal diseases (IRD).The gene therapy drug will be used as a treatment for patients with vision loss caused by RPE65 gene mutations. Mutations in the RPE65 gene are associated with two main types of IRDs – retinitis pigmentosa

Read more FDA approves Luxturna to treat patients with inherited retinal disease

Gene therapy company submit an application to NICE for the world’s first ever treatment for an inherited eye disease

10 August 2017
Source: Fight for Sight

Spark Therapeutics, an American gene therapy company, has published potentially ground-breaking data from the first ever Phase 3 clinical trial for an inherited retinal disease (IRD). This is the first time any treatment for a genetic disease has reached this stage. Published in the Lancet in July, the results illustrate how a new gene therapy drug called voretigene neparvovec could

Read more Gene therapy company submit an application to NICE for the world’s first ever treatment for an inherited eye disease